Caregivers and Communication PDF Print E-mail
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Written by Jeff Walls   
Thursday, 11 February 2010 07:17

One of the early symptoms of Alzheimer' Disease, is the deterioration of speech as well as trouble understanding others speak.  If you are caring for someone who has Alzheimer's Disease, then is it imperative that you find a way to communicate positively to the individual.  Being related to the person with AD can make this both easier and harder than for someone who isn't so emotionally connected.  Today, I want to highlight some basic tips on communicating with a person with AD.

 

As with all individuals with AD, a routine and personalized level of care has to be established.  I've mentioned before, that even the day to day functions of an individual may change significantly.  Being prepared to handle these changes will make it easier and less traumatic for both of you.  Finding your own way of communicating, that produces the best results, will greatly benefit you and the quality of life of a person with Alzheimer's. It is common for a person with AD to know what they want to say, but just can't find the word or phrase.  We all know how frustrating that can be for any of us. You are having a conversation and you have to stop to think of a specific word.  It becomes awkward as the conversation comes to a halt while we fumble around for that single word.  Now imagine, you having this trouble, several times a day.  Compound that feeling with not understanding what people are saying to you.  You may not recognize the words you are hearing, or know the word but forget the meaning.  It quickly becomes aggravating. A person with AD can become quite agitated during a simple conversation.

Here are some basic principles in establishing a positive and productive line of communication with the individual:

- Choose simple words and keep sentences short.  Use a gentle, calm tone of voice.
- Minimize distractions and noises (television, radio,...) when talking to the person.  This will help them focus on you.
- Call the person by name. Make sure you have their attention before you start speaking. This will help minimize repetition.
- Give them enough time to respond to you and try not to interrupt them.
- If they are struggling to find a word or communicate a thought, gently try to provide the word they are looking for.
- Always try to frame questions and instructions in a positive way.
- Do not talk to the person as if they weren't there. They may not respond to you, but that doesn't mean they cant hear or understand you.

- Most importantly, DO NOT TALK TO THE PERSON AS IF THEY ARE AN INFANT! This can be degrading and frustrating to the patient.

 

Depending on their cognitive level, some people can remember being more productive and active.  Losing the ability to communicate is an immediate intrusion on their independence.  Speaking to the person in "baby talk" or otherwise known as  "elderspeak" is demeaning. Studies show that it actually creates a negative response in individuals who are treated like children. Their is a fine line between being intimate and pandering.  If you are a spouse you can, and should, talk to them as you always have, with a level of intimacy.  Using nicknames or holding hands can revive the memory and help give the patient a more secure feeling even though they may not understand what is going on exactly at that moment.  By easing the stress for them, you ultimately relieve the stress on yourself as a caregiver.  Even if you are not personally involved in the person's life and are a professional caregiver, simple, kind gestures are still important. A smile can convey a lot, even if the person can't understand what you are saying.

 

Once you have established a routine with your patient, you will recognize that there may be certain times of the day that they are able to make themselves understood as well as understanding you.  Plan accordingly. Trying to force and activity or function will only create stress and poor results.  If the person tends to be more alert and responsive in the early morning, schedule appointments or visits during that time. Keep in mind, that a person with Alzheimer's is going to have good days and bad days.  Being flexible is as important as having patience.

 

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